Why is the month of November so important for those affected by pancreatic cancer?
November is important for those affected by pancreatic cancer in that it gives us a designated month to go the extra mile to bring awareness to the world's toughest cancer. World Pancreatic Cancer Day, is celebrated on the third Thursday of November. This year it falls on November 18 #WPCD a day to nationally recognize pancreatic cancer, bring awareness by wearing purple, decorate home/office take a photo and post on social media. Please use the following hashtags and post on social media.
#WPCD #pancreaticcanceroc #PancreaticCancer #DemandBetter
PurpleLight is an event to recognize those that have died from pancreatic cancer and honor those who have fought and are still fighting. Names are read, Luminaire bags, garden rocks with names positive thoughts, breaking a glow stick are some ways loved ones are acknowledged. This year is a little different in that it will be a virtual event.
"As long as you speak my name I shall live forever."
This episode of Living Hope is dedicated to Rosa's grandmother "Rosa Dominguez"
JB's childhood friend, Tyler Noesen was diagnosed with pancreatic cancer when he was only 25 years old. Tyler invited JB to attend his first PanCAN Advocacy Day in 2010, leading JB to continue to fight in Tyler's memory and becoming a volunteer with the Orange County Affiliate. JB has only been Affiliate Chair for 3 months and with the core leadership group has devoted many hours planning the goals for FY 2022. Besides supporting PanCAN's goals the OC Affiliate will hold monthly meetings giving updates about PanCAN, Affiliate updates, guest speakers and planning and supporting upcoming events. A main goal will be supporting our Survivors and Caregivers, maintain federal advocacy efforts, increase our social media presence and turn
Orange County Purple!
This episode of Living Hope is dedicated to Tyler Noesen.
Vic Luna, OC PanCAN PurpleStride Chair shares why he became involved and why you should join us for PanCAN PurpleStride Orange County 2022! Do you know how the funds raised by PanCAN PurpleStride fight the worlds toughest cancer? Are you interested in volunteering or becoming a sponsor?
Find these answers and more here on Living Hope; Your Journey with Pancreatic Cancer livestreaming on www.octalkradio.biz Orange County’s only community radio station.
Chemotherapy is a difficult treatment to go through. As difficult as it was Dawnie found a way to not only help her get through it, but it helped her support group as well. Dawnie is also very open about her experience with chemo side effects, neuropathy and having to learn her body again.
JB Jaso and Tyler Noesen were childhood friends. Life has a way of moving on, Tyler, married the love of his life and JB went on to join the US Army and serve our country. Even though they had not seen each other for a while, when Tyler was diagnosed with stage IV pancreatic cancer he asked JB to join him in Washington, DC and participate in PanCAN's National Advocacy Day. JB didn't know what to expect that day, but from that day on he continued the fight with Tyler and still continues today even after Tyler's death in 2012. Whether you watch or listen as JB shares his journey you will be moved. Taken from Tyler's Blog of Live "Dream as if you'll live forever, Live as if you'll die today."
Elissa joined the Hirshberg Foundation for Pancreatic Cancer Research after hearing stories about her sister-in-laws father who had died from pancreatic cancer. Though he died before they met, hearing her sister-in-law share stories about her father, inspired Elissa to get involved. This connection drew Elissa to Hirshberg and she now serves as their Communication Director. She shared her connection to pancreatic cancer, what a Communications Director does and upcoming event "Tour de Pier," on octalkradio.net Orange County's only community radio station. Livestreamed from UCI Beall Applied Innovation at the Cove For more information on the Hirshberg Foundation for Pancreatic Cancer Research please go to www.pancreatic.org
PAMELA ACOSTA MARQUARDT
Founder, Pamela Acosta Marquardt shares "What Only PanCAN is Doing." Pam talks about how Patients/Survivors and their families can call "Patient Services," they will be assigned their own personal Case Manager and provided with the most updated resources and information at no cost. Information like "Know Your Tumor," "Clinical Trial Data Base," and the "Patient Registry," along with other helpful information. Updates on PanCAN's Advocacy, Research and so much more is explored here on www.octalkradio.biz Orange County's only Community Radio Station livestreamed from UCI Beall Applied Innovation at the Cove
DR. LEE REITLER & DWAINE MATTEI-REITLER
Lee and Dwaine share their unique journey with pancreatic cancer. An amazing journey of two people who both lost their spouses to this disease and the surprising way they found each other. Wanting to honor their spouses they found a new passion and purpose that leads them to help others battling this disease. Dr. Reitler will also clue us in to what the pancreas is and why it is so important.
KELLY BARBER & WENDI CIHACEK
Kelly Barber and her sister Wendi Cihacek share their journey with pancreatic cancer. Kelly talks honestly and emotionally about losing her husband, George, in 2006 to Pancreatic Cancer. Wendi did the unimaginable and moved across the state to support her sister and help with her niece, Megan, who was 2 at the time. Kelly took her pain and grief and turn it into something positive. She became involved with her local PanCAN affiliate, attending meetings, raising awareness and funds and sharing her journey with members of congress. Not surprisingly Wendi stepped in and supported her at every turn. Kelly shares, “When we first got started, it was just for George. Today, it’s still for George, but it’s also for all the people we’ve met who are alive and fighting.”
AGI HIRSHBERB & LISA MANHEIM
Agi and Ron met by chance when Agi’s father coached Ron’s son’s soccer team. Little did they know that on that day they would meet, fall in love and marry 3 months later. Ron was a real dynamite of a man, they balanced each other immediately. Ron was a thinker and Agi was a doer. Partners in life, partners in business and partners in fighting pancreatic cancer. Losing Ron was devastating but, Agi refused to give up on what they had been fighting for. They were fighting for a cure, they were fighting to live. After Ron’s death, Agi immediately took her pain and grief and turned it into something positive, the start of a foundation in memory of the man she loved. Agi's daughter, Lisa had a promising career of her own. Wanting to support her mother she agreed to help with the foundation while she was on maternity leave. Though she fully intended to go back and pursue her career, 20+ years later Lisa is now the Executive Director for the Foundation for Pancreatic Cancer Research and Co-Founder of the annual event Tour de Pier.
Agi, not one to let any grass grow under her feet started working on the foundation immediately after Ron’s death in May 1997. In July, that same year, the Hirshberg Foundation for Pancreatic Cancer Research was born.
Dawnie Campbell, a Wife, mother, animal lover and a 2+ year pancreatic cancer survivor, shares her journey on how she went from being a energizer bunny to being exhausted. While on a business trip Dawnie experienced pain in her side and went to urgent care. Thinking it was a kidney stone, or infection she was give antibiotics. After returning home the pain continues, Dawnie decided to see her Dr and was immediately sent to the ER. Dawnie calls her husband, Scott letting him know she was going for tests and when she returns home they can decorate the house for Christmas. She walked over to ER thinking they’ll run some tests, give her some medicine and she’ll go home and be fine, but no that was not to be, she was admitted immediately.
What was the best advice Dawnie received during her journey? What did she do when uncomfortable with her treatment option? Find out the answers to these questions and more.
What happens when you take two people out of their comfort zone and turn the tables? Special guest Dawn Kamber, Public Affairs Director and Host of “Impact OC” is usually on the other side of the mic. Dawn interviews guests who impact Orange County in a positive way. We turned the tables when we asked Dawn to share her journey with pancreatic cancer which started with a simple media release. Even being in the media, like most, Dawn had never heard of pancreatic cancer until she heard Michael Landon had been diagnosed. Why aren’t we hearing more about the disease before reading it in the obituary? What do we need to do to get and keep pancreatic cancer in the media forefront and not just when a celebrity is involved? Why does someone who doesn’t have a personal connection with pancreatic cancer become involved? Answers to these questions and more.
DR MELISSA ROWLAND-GOLDSMITH
How many of us can say "I know what I want to be when I grow up?" Dr Rowland-Goldsmith knew exactly wanted she wanted to be at a very young age. She was horrified to hear a couple of girls make fun and laugh at a classmate when her wig fell off while changing for P.E. You see this little girl and been diagnosed with leukemia and lost her hair during chemotherapy. This event affected Melissa profoundly and she knew then she would be a oncologist. Her path took a little detour but she still has a tremendous affect on those diagnosed with pancreatic cancer. Her journey with pancreatic cancer will help mold future Doctors and Researchers to communicate better with patients.
DR. MARCUS WELBY WHERE ARE YOU
Marcus Welby, M.D. was a medical drama show that aired from 1969 to 1976. Dr Welby was a family practitioner, with a great bedside manner, kind heart and made house calls! How do Doctors of today compare to the Dr Welby's of yesteryear?
Would you or maybe the question is could you run 52 marathons in one year? Who does that? That is one marathon every week! All of this while holding down a full-time job. Was it her love of running or something deeper and more personal?
How would you handle only knowing your father through stories from family and friends? Trent Luna, a freshman in high school shares his journey how at an incredibly young age he went to Washington, DC, to share his story with Members of Congress; attended PurpleLight a yearly ceremony bringing those affected by pancreatic cancer together; walked in PurpleStride Orange County the walk to end pancreatic cancer, all to advocate for the father that was taken from him when he was only three and half months old.
Julia Tominaga shares her journey with her brother Curtis, “the kind of brother that always looked out for his sisters...almost like having a third parent.”
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Rick Pinson and his wife Linda became involved with PanCAN’s Orange County Affiliate in 2009 after Linda was diagnosed with pancreatic cancer. Rick shares his journey on why he still volunteers even after Linda's death in 2012. Rick remains actively involved and advocates in memory and in honor of Linda. Rick has been a leader serving as Advocacy Chair for the past 6 years and more recently accepted another role as PurpleStride Logistics Chair for the Orange County Affiliate.
Rosa's journey with pancreatic cancer began after learning her coworker’s wife was fighting this deadly disease. Instead of running away, Rosa ran towards Roberta and they soon became fast friends, “Besties.” During a PurpleLight in Orange County, a tribute to those affected by pancreatic cancer, Rosa, found out her Grandmother had died from pancreatic cancer. Rosa is open, honest and vulnerable as she takes you through her journey and why she became involved with the world’s toughest cancer.
Though the journey can be hard at times, it is a way to give back and can be a joyous ride as well. Rosa’s journey may cause you to shed some tears, but it will also bring some laughter and hopefully will encourage you to get involved.
Vic Luna and his perspective on dealing his wife's Pancreatic Cancer
Roberta Luna and her 19 year journey as a survivor (and counting)
Pamela Acosta Marquardt, founder of PANCREATIC CANCER ACTION NETWORK